Hi Everyone!
I am Harley,and this is my first blog. EVER. I was diagnosed with crohns at the age of 13, in December 2009. I am now 14, soon to be 15. I have been on stupid NG tube feeds for 13 (and a half) months. Except, THIS WHOLE month, I havent been doin them!!!! YAYY!!!! I have had severe crusty nose, and runny nose, and a crohnic sore throat, so mother dearest let me stop for a while :) .
I was on Remicade ( which I thought wasn't too bad, other than sitting in the hospital for 6 hours, and having constant upper respiratory issues), but now Remicade doesn't work for me. I am on humira. I have only had 2-3 doses. I don't want to take Humira. I want to try to heal my crohns through diet *(hint to the name of my blog)*
I was hesitant beginng humira, except I HAD to take the first dose, because I was in the hospital, then the second dose never came in the mail. PROBLEM? NOPE (well, not in my case)! I was luvin' it! I was trying a healthier diet. I wanted to keep trying, but I kept sneaking in small snacks that I shouldn't have been having, and of course I kept on getting worse. My mother finally came to me and said that I had to take the (stupid) humira. I agreed (not willingly). I took it, even though it was EXCRUCIATINGLY painful! *(another reason I absolutely HATE humira)*
I have decided that I am not going to sneak in any more little snacks. I am going to try a macrobiotic diet, and I am going to heal, just like my new friend Ginny did (her website listed at bottom). I want to be JUST like her. I want to not be on any meds, until I die,or turn old and HAVE TO go on meds. Anyway, I want to eat well, which as I have been told by my sister is cool, especially before your sweet 16 party.
I hope this diet works out and I will try to post a lot!!! LEAVE COMMENTS!!! !PLEASE!
Ginny Harper's website-
http://youcanhealyou.com/
Hi Harley-
ReplyDeleteI'm Ginny's son, she told me about your blog, i think it is really cool that you are sharing your story online. I grew up macrobiotic and still eat that way today, if you ever need any advice, just let me know. Ive been wanting to start a Facebook page for Kids Healing Crohn's Disease, would you want to help me?
Anyway, I look forward to checking your blog.
-Hyde
Sure! :D
ReplyDeleteI would love to!
I was thinking of making a video of my weekend here with Ginny when I go home. I have to upload all my mothers photos, she has one of the bigger cameras so I can't upload them here, but I would love to help with the facebook page!
P.S. ~ I love your mom!!!!! :P
~harley
Hi,
ReplyDeleteI am the father of a 14 year old girl that was diagnosed with ulcerative colitis at the age of 2,5. As parents we managed to heal her with the macrobiotic lifestyle. I wish you a lot of success with searching for the right path to health.
Ivan Govaerts from Belgium (Europe)
Thank You! :)
ReplyDeleteI appreciate it. Im glad to know someone else my age succeeded with this diet. :D
~Harley